Discussion about this post

User's avatar
Paul Singh's avatar

Sobering reading, and as you say, it can feel like we’re sounding like a broken record. But this is exactly the message that needs amplifying until our whole society actually hears it and takes it in. We are lucky to have you so clearly spelling out the connection between disability and poverty, and the impacts on the whānau in a household with one in more disabled people.

It really resonated for me because I’ve been trying to make a similar point about people under 65 living with dementia (Young-onset Dementia). This is not only a ‘health’ story about reduced quality of life and, shortened life expectancy. It is also a story about the financial and social impacts of dementia progression on the person, their whānau, and often dependent children and young adult children, who can end up becoming carers for a parent.

I agree with the solutions you’ve set out, and I agree with your wider point too: much of this should have been in place already, without the ‘we can’t afford it’ short-term thinking that has become endemic across successive governments. Instead, people receive empathy and sympathy, but that does not put kai on the table, does not secure a suitable whare for their needs, and does not deliver the changes to disability support, income support, education supports, and practical services that families actually require. I still have not heard a single political party say, directly and explicitly, what its policy is to shift the status quo you’ve described so well.

Once again, Dr Bex, we are in your debt. Thank you for your mahi and your advocacy. Let’s hope every party that wants to be in government after 7 November 2026 is listening. More importantly, let’s hope the current Coalition acts now, including in the 28 May Budget, in ways that make a real difference.

Gloria Sharp's avatar

Thanks for caring and taking action on behalf of us all. Are any of the parties standing for the election advocating your recommendations?

7 more comments...

No posts

Ready for more?